Membership

Join the global community

Whoever you are, there's a place for you in PMS GO. Choose the membership that fits you and apply in a few minutes — every member makes our community stronger.

For organizations

Organizational membership

For national or regional Phelan-McDermid associations that are legally registered. Full members shape the organization with voice and vote.

Voice & vote in the General Assembly
Eligible for the Board of Directors
Legal registration required

Apply as an organization Or download the official PDF (PDF in English)

Most common

For families & individuals

Delegate membership

For families and individuals affected by PMS, and informal groups in countries without a registered association. Take part with voice at the Assembly.

Open to families & individuals
For countries without an association
Participate with voice (no vote)

Apply as an individual / family Or download the official PDF (PDF in English)

For professionals

Professional partner

For clinicians, researchers, NGOs and rare-disease organizations who want to formally engage with our mission and global network.

Invited to meetings, with a voice
Collaborate on research & initiatives
Recognized as a formal partner

Apply as a professional partner Or download the official PDF (PDF in English)

How it works

From application to welcome

Apply

Complete the online application for your membership type.

Review

Our Board reviews your application and supporting information.

Welcome

Once approved, you join the global PMS community.

Not sure which membership fits? Email us at[email protected] and we'll help you find the right path.

We're here for you

Whenever you have questions, we're one message away.

Families, associations, clinicians and researchers — whoever you are, there's a place for you in the Phelan-McDermid community.